Thursday, August 9, 2012


I hope you will forgive me. Josh and I have had, most certainly, an incredibly exhausting week. We have been on a roller coaster of emotions, if ever there was one. We are chomping at the bit to tell you the whole story, and I promise, at some point, we will.

Right now, however, we are concentrating on one very beautiful little baby girl, Ember Rose, who has already blessed us immeasurably.

She is a beautiful disaster.

Ember and her mother are our main focus right now, and we hope you understand that at this point we just don't have the time, energy, or ability to share her incredible story. We are busy cuddling, kissing, and crying over this breathtaking baby girl.

Her story is filled with unspeakable highs and devastating lows. And I will take you through the whole thing, eventually.

For now, we ask that you continue to support our family in prayer.

Please pray for all of the people who love Ember, who have seen how beautiful she is and have marveled at her perfect physical appearance, and who have had to deal with the devastating blow that Ember cannot and will not survive or have any kind of conscience existence. The doctor's say she "cannot and will never be able to have a meaningful life"...but this is one thing she has proven them wrong about already! Ember's name means "spark" and comes with a story. It tells how everyone is drawn to the embers of a warm fire, and no one wants to leave until they're out. Her name fits her to a T. She draws crowds like no one I've ever seen, and no one wants to leave her side until she's gone. She leaves all who see her with a warm feeling of peace, and she is the spark her name defines!

Please pray for God to perfectly orchestrate the rest of her story, and that He will be glorified through it all! I can't wait to tell you of the amazing conversations Ember has allowed us to have with so many people who otherwise may never have heard how awesome our God is!

Please pray that Josh and I will have wisdom in the coming days. Pray for Jake and Eisley to continue having patience with us as we spend most of our waking hours at the hospital. Pray for our families as they are, once again, helping us walk through a very dark valley.

And most of all, pray for Ember Rose, that she will feel the love the doctors say she cannot be aware of. That she will continue to be a spark to those around her, sparking conversations deeper than any strangers usually feel comfortable having. And that God will use her tiny life that has been deemed meaningless, and give it the meaning only He could.


  1. WOW, what an incredible journey!! Our family has you all in our thoughts and prayers and we pray that he will take care of ALL involved. Love is sent your way. Love the Beikman and Nedeau Families

  2. Only Eternity will reveal the results of the effects that your pain, suffering and loss have had on countless numbers of people. You have shared so openly and deeply and have brought blessing and hope to so many. FIGHT ON!!!! Praying with/for you. Marilyn

  3. What an amazing story Ember has already! A beautiful disaster....God is amazing! We love you guys and are praying for you!!

  4. She is so beautiful.... God just never runs out of creative ways to teach us about Himself.